Mom of Sick Connecticut Teen 'Collapses' in Court After Judge Sends Kid to Foster Care

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Boston Children's Hospital said in a prepared statement to ABCNews.com earlier this month that they "acknowledge the tremendous efforts of our staff in caring for this patient. We are proud of their work and positive impact on the patient."

But the Coalition for Diagnostic Rights, which has also worked closely with the Pelletiers, is critical of the hospital and has called on the DCF to resume medical care for Justina.

"This case could not have developed had it not been for flagrant violations of patients' rights when Justina and her parents arrived at Boston children's Hospital a year ago," said spokeswoman Bridget Mildon. "We continue to demand that these violations be remedied by allowing the parents' original doctor of choice to determine what's in the child's best interests, and to advise the court in that capacity."

Pelletier said he and his wife have been only allowed to see their daughter on one-hour weekly supervised visits. They say her condition has deteriorated because the hospital has stopped all medical treatment for mitochondrial disease.

"She is going off a cliff," Pelletier said of his daughter, who is now confined to a wheelchair. "She looks awful and is pale and her hair is falling out. Her gums are receding and she has no body strength."

"The system has failed," said Justina's father Pelletier. "I am battling the medical world that thinks it knows everything."

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